Resources
Patient Support
As part of Scholar Rock’s commitment to patients, we offer programs and resources designed to provide support for patients and families in the United States, including:
- Help understanding and navigating insurance coverage
- Financial assistance for eligible patients
- Educational materials regarding the treatment process and disease state
- Connection to care coordinators for help with treatment process and site of care logistics
Patients and families living in the United States can learn more about Scholar Rock Supports™, Scholar Rock’s patient support program for ISEMBYLD™, by calling 833-777-5444 (833-SRRK-444) or visiting www.scholarrocksupports.com.
Resources
The organizations listed below offer resources, information, and networks to individuals and families affected by SMA.
Cure SMA
Provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA.
Muscular Dystrophy Association
Accelerates research, advances care, and advocates for the support of individuals and families affected by muscular dystrophy, ALS, and related neuromuscular diseases.
SMA Europe
Supports and advocates for SMA patients and families across European countries.
SMA News Today
Provides SMA news, education, and insights about clinical trials in the SMA research community.
National Organization for Rare Disorders (NORD)
Provides support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.
The EveryLife Foundation for Rare Diseases
Accelerates biotech innovation for rare disease treatment through science-driven public policy.
Our engagement with patient communities shapes our work every day.
