Resources
Resources and support
Scholar Rock is proud to work with the SMA community to learn about their lived experiences and to inform the work we do every day. The organizations listed below offer resources, information, and networks to individuals and families affected by SMA.
Resources
Cure SMA
Provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA.
Muscular Dystrophy Association
Accelerates research, advances care, and advocates for the support of individuals and families affected by muscular dystrophy, ALS, and related neuromuscular diseases.
SMA Europe
Supports and advocates for SMA patients and families across European countries.
SMA News Today
Provides SMA news, education, and insights about clinical trials in the SMA research community.
National Organization for Rare Disorders (NORD)
Provides support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.
The EveryLife Foundation for Rare Diseases
Accelerates biotech innovation for rare disease treatment through science-driven public policy.
Our engagement with patient communities shapes our work every day.
