Patient Stories

notes her hopes for future possibilities for herself and others in the SMA community.

shares some of her favorite things about her child, Jilli, a teenager living with SMA.

voices their goal of performing on a Broadway stage and what it means to live independently with SMA.

discusses life as a parent and caregiver for her son, who is living with SMA.

talks about his everyday life with SMA and what small gains in function could mean to him.

reflects on her accomplishments and what the word ‘possibilities’ means to her as a person living with SMA.

discusses her morning routine and how SMA affects her day-to-day life.

describes her experience with power soccer and her perspective as an athlete living with SMA.

a freelance graphic designer, shares her passion for art and how it has shaped her life with SMA.

the mother of three children living with SMA, offers a glimpse into her family.

speak about their families and what new possibilities mean to them and their loved ones.

and the possibilities they hope to see in the future.